I hate Asperger’s and what it has done to my family

I love my son. I just hate what Asperger’s has done to him.

I miss my little boy that liked to go outside and play. He wasn’t afraid of anything and loved to take a bath.

Now I can’t get him to go outside to play, he has breakdown when he has to take a shower and will not try anything new. He is scared to put his face in the water or ride a bike.

I just don’t know how to help him. I try to understand. I ask him to help me understand, but he doesn’t know how to explain it to me or to himself.

I want my little boy back!

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At a swimming party today, not having fun.

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I know that there are some things that a mommy can’t fix, but I wish I could fix this one thing.

First Post-Op visit and then some

Let me go back to when I first got home. I was discharged home on July 15, 2015. Everything was going great. They removed the small bandages, Tegaderm and steri strips were in place. The next thing I know, I can’t stop itching. Benadryl taken, nasty when open and mixed with water, cortisone cream applied.

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I emailed the above picture to my surgeon and got a phone call on the way down to Nashville to my visit.
It is an allergic reaction to the Tegaderm and steri strips. Which is a first for me. I have had my gallbladder removed and don’t remember having this type of reaction.

Today it is a little better.

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I am right on target with my weight loss. I am down a total of 35 lbs. since June 1, 2015.
I have been advanced to Stage 2, which is full liquids and a total of 60 grams of protein.
I am drinking 2 Premiere Protein shakes a day for the next 7 to 10 days. Then I can advance to the soft/pureed stage for 2 weeks. Then real food, but keeping at 60 grams of protein each day.

I really love my doctor. Due to me living 4 hours away, my next 2 visits will be phone calls to check on my weight loss and other things. Then I will be heading back to Nashville in December for a full visit.

Well it is time to drink a shake and start with the stinky farts!

From Surgery until now

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This was the morning of surgery on July 13, 2015. I was really excited that I didn’t get much sleep the night before.

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I needed to be at the hospital at 7AM, well we go there sooner, but not much of a wait to go back to pre-op.

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Got everything on and waiting to go back to the holding area. Getting a little nervous, but more excited.

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I made it to the losers bench!! I still can’t believe that I had the surgery and everything was going great. Once I was awake, I didn’t have much pain. Only had pain meds twice after surgery. I was able to get up and walk around 6pm that night and once I got the OK to walk on my own. I was up an moving all the time. Every time I woke up, I got up and walked the halls. Everyone was so impressed.

On July 14, 2015 the first day post-op, Dr. Houston came in and informed me that he just about didn’t do the surgery. I was shocked to say the least. He informed me that my hiatal hernia was bigger than what the Upper GI said and that I should of had the Gastric Bypass. But he went ahead and dissected the hernia and it slipped right back down. He was able to complete the Gastric Sleeve. I was so thankful as my wonderful Dad flew up from Florida to be with me and I had taken all of my PTO time to have the surgery.

I started drinking my fluids and I must be one lucky person as I have not had any issues with nausea or vomiting. I am only taking Tylenol for pain and of course my right side hurts the most as he said it would. This is the side where they take the dissected stomach out.
I am having a lot of itching to my belly and redness round the puncture sites, but I think the redness is from the instruments used and no infection.

I am getting my water and protein in each day and that is about it. I have gone through a case a bottled water since being home. Good thing I have a $25.00 gift card from Target. Dad was able to get 6 cases of water for me. We don’t have a Target that is close, so I waited to use it when we got down to Nashville.

Dr. Houston had stated that he may keep me for a total of 3 days due to the distance. We drove 4 hours one way to get there, but I only needed 2 days.

My pre surgical weight in was 296.4 lbs. I gained about 4 lbs. due to IV fluids, so my weight coming home was around 300. As of today I was 289.4lbs.

HW 321.6 SW 296.4 CW 289.4 Total to date: 32.2lbs from June 1, 2015.

I go back to work on Monday and then back down to Nashville for my post op appointment on Thursday.

If you are near the Nashville, TN area I would highly recommend checking out:

The Center for the Treatment of Obesity at Centennial Medical Center
http://www.cmcwls.com

Starting to panic and not about surgery

I moved back to my hometown one year ago. We, my son and I, were very active in Cub Scouts in Florida. I was in contact with the local counsel and trying to get Joshua ready for the new scout year.

What happened was, I help establish a new Cub Scout Pack. I have been close to tears, crying and wanting to give it all up. Don’t get me wrong, I love what scouting has done for my son but when you do just about everything on your own it gets trying. I did have help at times, but it has zapped my scouting spirit.
I really want to walk away from it all and not look back.

Now for the 2015 Scouting year, they have changed the program completely and it has caused me so many mental breakdowns. There are so many things that I have NO clue on how to do or how to teach the Cubs. Hence the panic.

I have so many doubts about this upcoming year. Will I get the help and leaders that I need? Will I have to completely take over and teach each group? I would love just to be the Cub Master and not have to be a Den Leader. Cub Scouts only work IF you have parents that stay evolved each week.

I don’t need this additional stress and panic, but I made a promise to my son and I will not break that promise.

Scared and Excited

I haven’t written in awhile, so I better update everyone.

I HAVE MY SURGERY DATE!! JULY 13, 2015 ONLY 7 day away. I am so excited and scared at the same time. I have been watching what I am eating, but it just doesn’t seem to be enough. I am getting my water in and trying to make the best choices that I can.

My Dad is flying in on Saturday and he is going to be with me during my time in the hospital and then stay for another week. Friday will be my last day a work and I will not have to go back until the Monday after surgery. That will allow me about 4 days at home to get adjusted to things and sleep. Thank goodness I work from home, it will make things so much better.

The biggest thing that I am scared about is it will not happen or will not work for me. I have never gotten this far before in my other attempts to have surgery.

Just say a little prayer for me, Especially next Monday. I am the 2nd case of the morning.